QualityCare™ is designed for people living with psoriasis, nonetheless both relatives and friends can benefit from joining QualityCare™.
Living with a chronic disease like psoriasis can be challenging. Research shows that a good support network with strong social and psychological assistance can improve self-care and quality of life. If you are a relative or friend of a person with psoriasis, your role matters!
Join now and get a better understanding of living with psoriasis
QualityCare™ is designed for people living with psoriasis, nonetheless both relatives and friends can benefit from joining QualityCare™. When you sign up to QualityCare™, you will get the same experience as if you were a patient. Signing up can give you a better understanding of how it’s like to live with psoriasis. You can also find tips and ideas on how to support your loved one. The articles cover many different topics. You can use them as a good starting point for a conversation with your friend or family member who has psoriasis.
Being close to a person living with psoriasis means that your own life is affected by the disease. Just like your loved one you have to find ways to cope with the disease. Acknowledging that you are also affected by psoriasis can be an eye-opener. Educate yourself about the disease. Do your best to support your friend or relative, but don’t forget your own needs in the process. If you need support yourself, reach out to friends or a health care professional. Psoriasis can be a serious illness, but it shouldn’t prevent you or your loved one from living life to the fullest.
How to support
Friends and relatives can play a crucial role in supporting a person living with psoriasis. Here are three things you can do:
Get informed: Understanding the disease and its consequences is an important first step in supporting your loved one. Educate yourself about the symptoms, the causes, and the treatments of psoriasis. Joining QualityCare™ is a good way to be informed.
Support treatment: Most patients will often use one or more medications to cope with the disease. There are several ways that you can support the treatment of a person with psoriasis. You can encourage your friend or relative to visit their doctor. You can offer to join them for their doctor’s visit. This can help your friend or relative better remember and understand their doctor's advise, and help you understand the disease and their treatment better. You can help with the application of a topical treatment, if one is prescribed, or simply remind them to take their treatment. Often psoriasis treatments need some time to work, so encouraging your friend or family member to adhere to the treatment plan can also help.
Offer stress relief: Psoriasis and stress are known to be related. Stress can trigger a flare-up, and having a flare-up can in turn cause more stress. Finding ways to deal with stress is an important part of coping with psoriasis. Do your best to help create a stress-free environment for your friend or family member. Lend a compassionate ear when your loved one needs to unload. Sometimes practical help with daily chores can relieve some of their burdens. Finally, there are several relaxation techniques that can provide stress relief in addition to also relieving psoriasis symptoms such as itch. These techniques include yoga, visualization and meditation – just to mention a few. You can encourage your friend or family member to explore some of these activities.
Ask how you can help
How a person experiences living with psoriasis can vary a great deal. You always have to tailor your support to the individual's needs. Try not to make assumptions about what your relative or friend needs from you, ask them instead. Be available – but not pushy.
Too much help can make a person feel patronized or disrespected. Loss of control is one of the most frustrating consequences of living with psoriasis. Therefore, the best support you can offer is to help them re-gain control by being able to take care of themselves. Avoid taking charge of your loved one's life and treatment, as you may easily end up being exhausted and feeling resented.